Sarcoidosis Sufferer Launches Site to Help Others with the Disease

It's a disease with few early warning signs and no known cause. African Americans are more susceptible, but it can strike anyone.

Irving, TX (prHWY.com) October 28, 2011 - New York, NY - Oct. 28, 2011 - It's a disease with few early warning signs and no known cause. African Americans are more susceptible, but it can strike anyone. The disease is sarcoidosis and a diagnosis is difficult to render. For those suffering from the debilitating condition, Dee Taylor has launched Sarcoidosiscure.org, a site dedicated to providing factual information about the disease and sarcoidosis treatment.

"Sarcoidosiscure.org is specifically for individuals who have been diagnosed or believe that they have sarcoidosis," said Taylor. "It provides information about the frustrating and often debilitating condition and offers hope and quality information for those who need it."

Taylor is uniquely positioned to write about sarcoidosis. She suffers from the disease herself. The website provides information and support for those newly diagnosed and anyone who has been living with the disease. Taylor explores symptoms of the disease and sarcoidosis treatments currently being used, along with alternative methods that have proven helpful. Taylor is also seeking input from others with the disease about various treatments that have worked and those that haven't.

The cause of sarcoidosis isn't known, but it affects thousands of new patients each year. The medical community has hypothesized that the disease is genetic, an extreme immune response or a sensitivity to the environment. Taylor shares her own findings and experiences on the site and invites others with the disease to do the same.

The disease causes inflammation and clumps of abnormal tissue throughout the body. It can affect any organ, but typically lodges in the lungs. Onset usually begins between the ages of 20-40. Women are more likely to contract the disease than men, with African American and Caucasians of Scandinavian heritage at highest risk. The disease is especially insidious, as symptoms often mimic other conditions, but all patients suffer from chest pain, shortness of breath and a dry cough.

As the disease progresses, other symptoms appear that can include fatigue, achy joints and weight loss. Some with the illness experience hair loss and raised sores on the legs, in addition to headaches and seizures. The disease manifests in a number of ways, and patients may experience a myriad of eye-related problems, along with nosebleeds and swelling of the upper abdomen.

Evidence of the disease may first be located during a routine chest x-ray, CT scan or typical lab test. A biopsy is typically ordered to make a definitive diagnosis. A variety of medications are used to treat the symptoms of sarcoidosis, with varying results.

Taylor addresses sarcoidosis realistically and honestly, providing a forum for those with the disease to voice their thoughts and concerns, and ask questions about any aspect of the illness. She welcomes comments and input about sarcoidosis treatments. The site is dedicated to providing information for those with the disease and a forum for learning more about the illness.

For more information, visit the website at http://www.sarcoidosiscure.org.

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Tag Words: sarcoidosis treatment

Categories: Health

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